Becoming VISIBLE 4ME
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Saturday, May 19, 2012
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April 2012 ME Story:  Laura

April 2012 ME Story: Laura

When I was a teenager I always thought that by the age of thirty two I would be a successful lawyer, be married with a couple of children and live ...

March 2012 ME Story:  Meg

March 2012 ME Story: Meg

It was an odd experience and one I was sure wouldn’t be repeated. I had just driven home from college, a twenty-minute drive down California Highway 17, car windows rolled down ...

Feb 2012 ME Story:  Giles

Feb 2012 ME Story: Giles

"Other people" have weird, disabling, long term illnesses, don't they? At the start of one early Thursday morning in the November when I was 22, I boarded the train to an ...

Jan 2012 ME Story: Kassy

Jan 2012 ME Story: Kassy

It’s a new year, as I write this, Top Ten lists are everywhere, inventories are being taken and ledgers are being balanced. So I thought I would write my M.E. ...

Dec 2011 ME Story: Cusp

Dec 2011 ME Story: Cusp

It’s the late 1950s. On a hot summer’s day a small child of about two plays in an English suburban garden with Mummy and Daddy.  The child is very active, ...

Oct 2011 ME Story:  Amy

Oct 2011 ME Story: Amy

So here we go, this is me having my chance to tell my story.  It’s something I have wanted to do for such a long time, but now it’s here ...

Sept 2011 ME Story:  Barry

Sept 2011 ME Story: Barry

Hello.  I am a 37 year old man who became ill around 15 months ago with what was eventually diagnosed as ME/CFS. The first clue I had that things were awry ...

August 2011 ME Story:  Sue

August 2011 ME Story: Sue

March 21, 2002 I’m so sick of feeling exhausted and achy, so sick of lying on the couch, so sick of getting nothing done.  I want my life back! When I wrote ...

July 2011 ME Story:  Susannah

July 2011 ME Story: Susannah

Fifteen years ago I was a relatively happy nursing student, working night and day to graduate. I had friends, a life, and a purpose. I was, arguably, a borderline workaholic ...

June 2011 ME Story:  Linda

June 2011 ME Story: Linda

I remember the precise moment it struck:  June 9, 2007, shortly after 10:00 a.m. It would be identified a couple of years later as Chronic Fatigue Syndrome (or CFS for short) Backing ...

Interview with Rik Carlson

Interview with Rik Carlson

My second interview that I was lucky to get for our May 12th International ME Day was with Rik Carlson, Founder of the Vermont CFIDS Association. Perhaps best known for his ...

May 2011 ME Story:  Renee

May 2011 ME Story: Renee

I began having periodic symptoms of Chronic Fatigue Syndrome as far back as 1978 and in 1979 was told by one doctor that I had mono like illness...

Interview with Toni Bernhard

Interview with Toni Bernhard

Author and friend, Toni Bernhard, agreed to do an interview with me for ME International Awareness Day, concerning her life and her recent book, How to be sick.  I think ...

April 2011 ME Story: Gail

April 2011 ME Story: Gail

My story about Myalgic Encephalomyelitis (M.E.) or Chronic Fatigue Syndrome (CFS) "Gail Upnorth"in 2002, back when I was in my early thirties. Following University I worked for eight years as a wilderness educator.

March 2011 ME Story: Toni

March 2011 ME Story: Toni

In the summer of 2001, I had the next couple of decades of my life mapped out.  I’d be teaching law, traveling to visit my children and their families, and attending ...

February 2011 ME Story:  Laurel

February 2011 ME Story: Laurel

I remember the exact moment I first became ill. It was December 31st, 1996 around 3 o'clock in the afternoon....

Why I Created BV4ME

Why I Created BV4ME

The one goal of the organization is to share 1Story@aTime, every single month with a culmination on May 12th which is the International ME Day.

April 2012 ME Story:  Laura

April 2012 ME Story: Laura

Thursday, April 12, 2012
March 2012 ME Story:  Meg

March 2012 ME Story: Meg

Monday, March 12, 2012
Feb 2012 ME Story:  Giles

Feb 2012 ME Story: Giles

Sunday, February 12, 2012
Jan 2012 ME Story: Kassy

Jan 2012 ME Story: Kassy

Thursday, January 12, 2012
Dec 2011 ME Story: Cusp

Dec 2011 ME Story: Cusp

Monday, December 12, 2011
Oct 2011 ME Story:  Amy

Oct 2011 ME Story: Amy

Wednesday, October 12, 2011
Sept 2011 ME Story:  Barry

Sept 2011 ME Story: Barry

Monday, September 12, 2011
August 2011 ME Story:  Sue

August 2011 ME Story: Sue

Friday, August 12, 2011
July 2011 ME Story:  Susannah

July 2011 ME Story: Susannah

Tuesday, July 12, 2011
June 2011 ME Story:  Linda

June 2011 ME Story: Linda

Sunday, June 12, 2011
Interview with Rik Carlson

Interview with Rik Carlson

Thursday, May 12, 2011
May 2011 ME Story:  Renee

May 2011 ME Story: Renee

Thursday, May 12, 2011
Interview with Toni Bernhard

Interview with Toni Bernhard

Thursday, May 12, 2011
April 2011 ME Story: Gail

April 2011 ME Story: Gail

Tuesday, April 12, 2011
March 2011 ME Story: Toni

March 2011 ME Story: Toni

Saturday, March 12, 2011
February 2011 ME Story:  Laurel

February 2011 ME Story: Laurel

Saturday, February 12, 2011
Why I Created BV4ME

Why I Created BV4ME

Friday, February 11, 2011
  • "Where M.E. and CFS overlap, they undoubtedly represent the same illness, however, due to the considerable definitional and conceptual differences, CFS and M.E. should not be considered the same illness."

    ~Dr. Byron Hyde~

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